RESOURCES

 

Medical info

(Disease organizations, resources, etc.)


ArthritisFoundation’s Kids Get Arthritis Too

AutoinflammatoryAlliance

Check Orphan (rare,orphan, and neglected diseases)

Cure JM

Global Genes:  Allies in Rare Diseases

Immune DeficiencyFoundation

International Foundation for Autoimmune and Autoinflammatory Arthritis (IFAA)

NIH/Genetic andRare Diseases Information Center

NationalOrganization for Rare Disorders

Rare Connect

Systemic JIAFoundation


Camps

Camp Boggy Creek

Camp Funrise:  Nicklaus Children’s Hospital

Camp Sunrise

Serious FunChildren’s Network

 

 

Funding

(Assistance Fund, co-pay cards)

Many drugs manufacturers provide "co-pay assistance cards" that will help off-set the cost of medications, sometimes funding the entire co-payment for qualifying patients. Please contact the maker of your medication to see if you qualify.

 

The Assistance Fund 

Copays shouldn't interfere with your life – that's why we work everyday to give you access to the medications you need.

Miracle Flights 

Provides financial assistance to low-income children for commercial air travel to obtain special medical care; to promote awareness of our services through targeted outreach programs; to enlist the help of community-minded people through strategic calls to action.

 

Wish Granters

New Hope’s Wishes for Kids

Make-A-Wish

Merlin’s MagicWand

Starlight Children’s Foundation