Abbie Grace (15-years-old) began her journey with multiple diagnoses at six months old. She has hereditary alpha tryptasemia syndrome (HATS), Marfan’s Syndrome, gastroparesis, gastrointestinal pseudo-obstruction, Spina Bifida, and dysautonomia.

Abbie Grace struggles with constant fatigue, nausea, muscle soreness, and pain. She said, “Even if I sleep 12 hours, it is not enough sleep.” This kid has endured a lot — she has had infection go septic and has had a blood clot in her heart.

Abbie Grace said that she would want other people to know that “there is never an end, but I wouldn’t want them to feel sorry for me.” She also feels that you must find your passions so that you can use them to divert your attention from the hardship of the chronic illness. Abbie Grace really loves dance. She dances for herself. It is definitely her greatest passion.

While dealing with chronic illness is quite difficult, a lot of good has also come from the journey. Abbie Grace shared, “I think it has made up most of my personality. You can’t take things for granted. You have to appreciate everything. Tomorrow’s never guaranteed; you always live for today.”

Abbie Grace has always loved to volunteer. She has done a lot for Make-A-Wish and writes “Letters of Hope” for kids with chronic illness in hospital/homebound school.

Her advice: “Enjoy the moments. It’s a cycle. Enjoy the recovery and peacefulness before you have the symptoms again. Find a way to keep the passions in your life.”

Do you know an amazing kid with chronic illness who gives back to the community? Nominate them at ppf@purpleplayasfoundation.com